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Respect des libertés, besoin des aidants et protection juridique

Abstract : How to respect the freedom of the people who suffer from the disease of Alzheimer and who are under the legal protection brings up a question that must be considered today as that of the need of those who are helping. Ten monographs and two panels with experts, patients and professionnal and home help, and the legal analysis of the rules relating to the usable law entitled a narrow articulation of the "empirical" and "legal" aspects. The main results of the study affect several dilemmas of the action. For example : which place finds the person who are under the legal protection ... to take care and think its future : which projects ? How to deal between freedom and protection and/or the watching over the patient, for instance, as far as the risks that may induce a lack of watching and, a contrario, an extreme watching. Another example: to say or not the diagnosis ; the importance of the information in the matter of diagnosis is concerned has turned out crucial as to grasp and to understand the changes that have been already lived and those that will be lived in order to consider the future, to make projects necessary to nurse respectively the achievement of the person and her family and professional circle. Discussions with professionals useful/y enriched the results and led in complement of this report a note of recommendations concerning the actions to carry out which would answer waitings of the institutional ones as well as of the patients and their family, without making double use with what right now is existing, as regards legal protection or concerning the disease. There is a booklet of recommendations with the report.
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https://halshs.archives-ouvertes.fr/halshs-01063885
Contributor : Véronique Lacroix <>
Submitted on : Monday, September 15, 2014 - 9:05:12 AM
Last modification on : Friday, October 23, 2020 - 4:55:21 PM
Long-term archiving on: : Friday, April 14, 2017 - 1:37:35 PM

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  • HAL Id : halshs-01063885, version 1

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Jean-Luc Choquet, Brigitte Croff, Micheline Mauduit, Béatrice Espesson Vergeat, Joël Moret-Bailly, et al.. Respect des libertés, besoin des aidants et protection juridique. [Rapport de recherche] Fondation Médéric Alzheimer. 2003, 154 p. ⟨halshs-01063885⟩

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