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Au-delà de la technologie : travailler à la fiabilité de la prédiction génétique

Abstract : Prediction is an essential dimension of the clinical uses of genetics. Frequent discourses falling under the regime of techno-scientific promises tend to overestimate its capacities. By successively exploring the genetics of rare diseases and oncogenetics, in which genetic prediction is practiced for a long time, we argue that the image of genomic technologies as producers of reliable predictions is not the consequence of these sole technoscientific and commercial promises. It also results from a significant amount of constant but not very visible labour from the professionals, in order to regulate the uses of genetic prediction. This labour results in the minimizing the perception of uncertainty by external circles. In a context of strong (commercial) pressure to extend the uses of genetic tests, this situation raises important political questions.
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Submitted on : Monday, February 3, 2020 - 10:45:58 PM
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Catherine Bourgain, Claire Beaudevin. Au-delà de la technologie : travailler à la fiabilité de la prédiction génétique. Médecine et philosophie, Association Médecine et philosophie, 2020. ⟨halshs-02447150⟩



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