Very early signs of autism reported by parents include many concerns not specific to autism criteria.

This study assessed parents' first concerns about their autistic child. This information was categorized so that it could help healthcare professionals improve early detection of autism. We designed a questionnaire using an open-ended format, and 459 questionnaires were completed by parents to assess difficulties encountered in obtaining a diagnosis for their child. Answers about their first motive of concerns were categorized and compared with regards to age, gender, birth order, age of onset, delay in seeking professional advice, and delay in diagnosis. Concerns about social development or autistic behaviors were frequent, but not exclusive. Parents were divided into three clusters of concerns: (a) an ''early awareness group'': which included motor problems and passivity (14.6 months); (b)''intermediate awareness group'': included emotional, hyperactivity, and sleep problems (15.3 months); and (c) a ''later awareness group'': which included communication problems, poor social interaction, and autistic type behaviors (22.3 months). Parents who noticed general concerns not specific to autism were worried earlier, but received a later diagnosis. We suggest that motor problems, and/or emotional problems, and/or the level of a child's activity should encourage frontline professionals to seek autistic symptoms in infants.

Mots clés

Early diagnosis Autism Parents' first concerns Questionnaire France

Domaines

Sociologie

Liste complète des métadonnées

Format du dépôt	Notice
Type de dépôt	Article dans une revue
Titre	en Very early signs of autism reported by parents include many concerns not specific to autism criteria.
Résumé	en This study assessed parents' first concerns about their autistic child. This information was categorized so that it could help healthcare professionals improve early detection of autism. We designed a questionnaire using an open-ended format, and 459 questionnaires were completed by parents to assess difficulties encountered in obtaining a diagnosis for their child. Answers about their first motive of concerns were categorized and compared with regards to age, gender, birth order, age of onset, delay in seeking professional advice, and delay in diagnosis. Concerns about social development or autistic behaviors were frequent, but not exclusive. Parents were divided into three clusters of concerns: (a) an ''early awareness group'': which included motor problems and passivity (14.6 months); (b)''intermediate awareness group'': included emotional, hyperactivity, and sleep problems (15.3 months); and (c) a ''later awareness group'': which included communication problems, poor social interaction, and autistic type behaviors (22.3 months). Parents who noticed general concerns not specific to autism were worried earlier, but received a later diagnosis. We suggest that motor problems, and/or emotional problems, and/or the level of a child's activity should encourage frontline professionals to seek autistic symptoms in infants.
Auteur(s)	Vincent Guinchat ^{1, 2} , Brigitte Chamak ³ , Béatrice Bonniau ³ , Nicolas Bodeau ¹ , Didier Perisse ¹ , David Cohen ^{1, 2} , Anne Danion ⁴ 1 CHU Pitié-Salpêtrière [AP-HP] ( 353778 ) - 47-83 Boulevard de l'Hôpital, 75013 Paris - France Assistance publique - Hôpitaux de Paris (AP-HP) ( 300068 ) ; Sorbonne Université ( 413221 ) 2 ISIR - Institut des Systèmes Intelligents et de Robotique ( 96164 ) - Université Pierre et Marie Curie - Paris VI Boite courrier 173 4 Place JUSSIEU 75252 Paris cedex 05 - France Université Pierre et Marie Curie - Paris 6 ( 93591 ) ; Centre National de la Recherche Scientifique UMR7222 / FRE2507 ( 441569 ) 3 CERMES3 - UMR 8211 / U988 / UM 7 - CERMES3 - Centre de recherche Médecine, sciences, santé, santé mentale, société ( 176631 ) - 7 rue Guy Môquet - BP 8 - 94801 Villejuif Cedex Site administratif : Campus CNRS- 7, rue Guy Môquet- BP 8- 94801 Villejuif Cedex Site Paris: CUSP (Centre universitaire des Saints-Pères)- Bâtiment Jacob (3ème étage)- 45, rue des Saints-Pères- 75270 Paris Cedex 06 - France École des hautes études en sciences sociales UMR 8211 ( 99539 ) ; Université Paris Descartes - Paris 5 UM 7 ( 301664 ) ; Institut National de la Santé et de la Recherche Médicale U988 ( 303623 ) ; Centre National de la Recherche Scientifique UMR 8211 ( 441569 ) 4 Service Psychothérapique pour Enfants et Adolescents ( 198093 ) - 15 rue Cranach 67200 STRASBOURG - France Hôpital de l'Elsau ( 348725 )
Comité de lecture	Oui
Vulgarisation	Non
Langue du document	Anglais
Nom de la revue	Research in Autism Spectrum Disorders (ISSN : 1750-9467, ISSN électronique : 1878-0237) Elsevier Publié par Elsevier https://www.journals.elsevier.com/research-in-autism-spectrum-disorders
Audience	Non spécifiée
Date de publication	2012
Volume	6
Page/Identifiant	589-601
Domaine(s)	Sciences de l'Homme et Société/Sociologie
Mots-clés	fr Early diagnosis, Autism, Parents' first concerns, Questionnaire, France
DOI	10.1016/j.rasd.2011.10.005

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https://shs.hal.science/halshs-00875787

Soumis le : mardi 22 octobre 2013 à 17:12:58

Dernière modification le : lundi 18 mars 2024 à 10:24:07

Dates et versions

halshs-00875787, version 1 (22-10-2013)

Identifiants

HAL Id : halshs-00875787 , version 1
DOI : 10.1016/j.rasd.2011.10.005

Citer

Vincent Guinchat, Brigitte Chamak, Béatrice Bonniau, Nicolas Bodeau, Didier Perisse, et al.. Very early signs of autism reported by parents include many concerns not specific to autism criteria.. Research in Autism Spectrum Disorders, 2012, 6, pp.589-601. ⟨10.1016/j.rasd.2011.10.005⟩. ⟨halshs-00875787⟩

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