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The autism diagnostic experiences of French parents.

Abstract : This survey focused on French parents' views of the diagnostic process relating to their child with autism. Data were collected on the age at diagnosis, the time taken to obtain a diagnosis and the difficulties encountered. Questionnaires filled in by the parents (n = 248) and in-depth interviews (n = 43) were analyzed in order to obtain quantitative and qualitative results. The ages of the children ranged from 4 to 45. This approach enabled us to compare the practices of professionals now and in the past. The mean age of diagnosis was 10 ± 8 years from 1960 to 1990, 5 ± 3 years from 1990 to 2005 (3 ± 1 from 2003 to 2005). The results showed that the mean delays between first consultation and diagnosis were reduced. Regarding the way the diagnosis was announced, 63% of the parents of children with autism and 93% of the parents of adults with autism were dissatisfied. We discuss the parents' reactions and the changes in the diagnostic process.
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https://halshs.archives-ouvertes.fr/halshs-00717651
Contributor : Brigitte Chamak <>
Submitted on : Friday, July 13, 2012 - 12:12:10 PM
Last modification on : Tuesday, April 14, 2020 - 11:58:50 AM

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  • HAL Id : halshs-00717651, version 1

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Brigitte Chamak, Béatrice Bonniau, Lila Oudaya, Alain Ehrenberg. The autism diagnostic experiences of French parents.. Autism, SAGE Publications, 2011, 15, pp.83-97. ⟨halshs-00717651⟩

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