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Prenatal Diagnosis 18, 5 (1998) 437-45
Adoption and fostering of babies with Down syndrome: a cohort of 593 cases.
Annick-Camille Dumaret ( ) 1, Catherine De Vigan 2, 3, Claire Julian-Reynier 4, Janine Goujard 2, 3, Dominique Rosset 5, Ségolène Aymé 6
(05/1998)

Recently, professionals in France have noticed an increase in newborns with Down syndrome (DS) being placed for adoption. The aim of this study was to investigate DS babies given up at birth for adoption and to consider the possible determinants of this in order to assess social acceptance of DS. A retrospective cohort of all living DS babies was collected from two birth-defect registries (Paris: 1981-1990; Marseilles area: 1984-1990). Follow-up data were collected: characteristics of the baby, biological parents and maternity units, age when given up for adoption, and type of foster care. The results showed that 19.4 per cent of infants with DS (115/593) were rejected by their parents. Multiple regression analysis indicated that foreign origin of the mother, area of residence, no associated major malformation, maternal age (15-24 years), and birth rank (> 2) variables were significantly associated with a lower placement rate. Among the 115 abandoned infants with DS, 88 came from unknown parentage (76.5 per cent). For half of them, adoptive placement (88/115) occurred before the age of 6 months. Socio-cultural attitudes play a great part in these family decisions. Equally important is the manner in which professionals propose adoption as an alternative to these parents of DS babies. They should be encouraged to consider all options before making a decision, so that the best solution can be found for the interest of all.
1 :  Centre de recherche Médecine, Science, Santé et Société (CERMES)
CNRS : UMR8169 – Université Paris XI - Paris Sud – École des Hautes Études en Sciences Sociales [EHESS] – INSERM : U750
2 :  Recherches épidémiologiques en santé périnatale et santé des femmes
INSERM : IFR69 – Université Pierre et Marie Curie [UPMC] - Paris VI
3 :  Registre des Malformations Congénitales de Paris
Registre des Malformations Congénitales de Paris
4 :  Epidémiologie et Sciences Sociales Appliquées à l'Innovation Médicale
INSERM : U379 – Université de la Méditerranée - Aix-Marseille II
5 :  Aide sociale à l'enfance de Paris (DASES)
Aide sociale à l'enfance de Paris
6 :  Cartographie du Genome Humain a des Fins de Recherche Clinique
INSERM : SC11 – Université Pierre et Marie Curie [UPMC] - Paris VI
Sciences du Vivant/Bio-Informatique, Biologie Systémique

Informatique/Bio-informatique
Down syndrome – human adoption – foster care
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